ECG and some results

Reagan will be 9 mths in a wks time, she still refuses to eat solid food almost completely, although we had a few breakthroughs this wk.
On Tuesday she ate an entire yogurt (albeit it a small one!!!) on Wednesday she ate 1/3 of a fish finger(healthy I know) AND a whole yogurt and last night she had home made carbonara minus the bacon and a whole yogurt again. So small steps.......

She still wakes several times a night, or sometimes doesn't even make it to her own bed!

Today I had a call out of the blue to take her FCC for an ECG! Which was odd I thought. Turns out that when her scan was done a. Few wks ago an ECG was meant to have been arranged too but never was. And the cardiologist from southampton was at Frimley so they decided to call her in and if it looked bad they could pass it to him for his opinion. It was 'satisfactory' though so that was good.

Then later today i got a call from dr plilidis saying that they have looked at the gene RPS19 to see if it is mutated and thus confirming DBA, however, its fine. This is the most common gene mutation that effects around 25-30% of DBA sufferers. Now they look at the the genes. So we need to wait some more!

Also the report from her hand xray says that her thumbs are normal. She has a copy of her chest xray now and is waiting for that to be looked at.

Over and out!!