Clinic appt with DR Pelidis

We went to see Dr Pelidid yesterday (Tue 8th March) just for a clinic appt.

Reagan weighs 16lb 5oz, so has gained half lb in 4 wks which is fab at this age and means she has crept just a little bit further up from the 4th centile on the the growth chart and a little closer to the the 9th!! Not far off being half way between both i reackon!! In fact Dr Pelidis made not comment on her weight at all whic I take to mean there is no issue!! Hurrah....at bloody last eh?
Ive had quite a few people comment over th last wk on how she's grown.

Reagan gets her viracella (chicken pox) vaccine next Monday, Pelidis thought it best that it was in her system for a few wks before starting steroids so it was decided that we would do one more transfusion then start them a wk or so after that.
Because she had more blood this time we're leaving it 4 wks before giving her another transfusion, so that will be on 29th March. We're going to st Georges again because it was kinder on Reagan and Pelidis said that because she has already had one there that her info is recorded now and and the blood would be ordered the day before she goes in, so it SHOULD be quicker (providing the cross match is OK -this is where the test her blood with that of the donors blood to check for a reaction before giving it to her)

So the steroids should be starting in the first wk of Apr (just as Alex gets home from a wk in Orlando with work!)

We don't go back to see her for another 8 wks now. It's always such a nightmare getting the appt made. They're always full so they say that they have to book then next available appt and write us in on the over booking form and pass it to his manager who will over book the clinic and contact us with a time etc. Well last time it didn't work at all, we heard nothing and got nowhere when trying to book it.

So this time I suggested he book in an appt for 16 wks time (so the appt after next) so that we've already got that one sorted and still write us in on the over booking form.........god it was hard work trying to explain this to him!!! I think we got there but I'll be surprised if I get a call/letter with an appt for 8 wks!!!

When we were in last wk for her transfusion the nurse looking after her said we might be able to claim back our petrol and get the carpark paid for each time we come.
When we went to ask it turns out we can! I just had to take in reagans DLA form (I don't think I've posted that she gets disability allowance have I? I'll check )
Anyway i took it yesterday and after her nearly having heart attack due to stressing herself out so much we got re-embedded £90!! For the last 3 mths and the the carpark for yesterday. I was really pleased with that!! Each time we go we will get about £18 i think!