Tues 8th Feb
Appt with Dr Pelidis today, we went over the events of the day before and she said she'd talk to the surgeon about a port-a-cath, this is a semi permanent line that's put in under her arm I think. They can take blood from it and give transfusions into it. Normally you have to be over 10kg to have one but shes going to see what she can do because Reagan seems to have such a hard time. Other wise the other option is a hick man witch is an external line,which would mean she could swim (not sure about bathing but don't think so) and its open to infection. S its not really something we would probably consider.
We decided that she should have an HB over 9 and so she is to be transfused again in 3 wks time. She will also have her last lot of immunisations that wk and will then be ready to start on the steroids.
We're going back to see Dr Pelidis in 4 wks time.
We asked if we could get her transfused at St Georges this time to se if she has an easier time of it. She said that it was a long way for us to come but we're still sure that it will take less than the 10.5hrs it took at Frimley Park yesterday!
Tomorrow she will have her MMR and boosters!
Oh and she weighed 15lb 12oz! Still gaining weight fabulously!! Her length was 67cm.
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